Struggling to Help your Child? Learn to Navigate the Medical Maze with Confidence!

Empower your loved one's medical journey with our complementary 25-question Parent Scorecard: Crack the Code: Navigating Medical Systems for Parents
Make a blueprint tailored to your unique family situation.

With our scorecard you can gain vital insights on where to focus your energy to enhance your child or loved one’s care. Understand your strengths and pinpoint areas for growth to navigate the healthcare system with confidence.

It’s not your fault! Conventional parenting tools can fall short in the medical realm. You could not have been prepared for the news you’ve received.


Stand Tall. If you are blaming yourself, please don’t. We are all ill-equipped at the beginning. So many of us have gone through this feeling,   The task now is to get better equipped with each passing day. And better connected to others who can relate and can walk alongside.

Amy if the mom of a 20 and y/o medically complex child (who is a child no longer, but a warrier who has come out the other side!) Amy will help you uncover the hidden resources and strategies to get what you need (that you didn’t even know existed) from the medical system.

Like a sherpa, Amy provides Expert Navigation Through the Healthcare Maze.

What's Included in the Parent's Blueprint

My Mentoring

Make sense of your options, create order, get out of overwhelm.

In our sessions, first I listen. Each person's medical journey is different. Knowing the particulars of your story is crucial to my ability to help see a path forward.

Working with me can help you put order to the chaos. Know what to do first. Decide where the heck to turn.

Start with a free consultation. I want to understand your specific story so we can tailor a custom plan. You may choose to use my services through many stages of care, or just to get your feet on the path. Decide as you go.

Tools to Bring Clarity

Tools and worksheets to help you put the pieces together.

Working together I will provide blueprints, downloadable worksheets, checklists and cheatsheets to bring with you to medical and other appointments.

You can attend small group and one-one one coaching sessions to prepare for big events and gain solid footing on new ground.

Rare Care Hub

Find your Tribe
We provide a dedicated space for subscribers to connect, share
experiences, and seek advice from one another.

With AdvocateAngel, you'll connect with families who get it, in a space where your child's uniqueness is celebrated. It's a place to share, laugh, and find support in a community of heroes—parents just like you.

Share the results of your SCORECARD in our Facebook Group -- Join our Rare Care Hub .

Benefits of Subscribing to Our Coaching and Follow-up Program

  • Make connections with other you can rely on as sounding board and witness

  • Attend customized trainings and workshops to meet your family's specific needs

  • Reduce Stress & Confusion, increase joy. Create plans to maintain balance and noursihment through stressful times.

The main takeaways for subscribers are efficacy and clarity, peace of mind, and constantly increasing skills to meet the changing demands of complex medical situations. By signing up for personalized recommendations from a mom who's been there, you can improve your child's outcomes by speeding the path to diagnosis, and more adeptly handling the dilemmas parents and families face in these situations. TPlease let me know if you need any other benefit ideas to highlight or expand upon for the funnel.

“It is more important to know what kind of patient has the
disease than what kind of disease the patient has”.—Sir William Osler

About Me

Amy Schefer

A Personal Mentor

I am a medical ninja, helping my kid through 20 years of intense medical challenges. Mission: find and help other families get the best outcomes.

I am published in numerous medical journals and have helped numerous families along medically complex journeys, learning valuable skills and tools along the way, and preserving joiy at the center.


Amy and I both have children affected by the same rare medical condition in which we have fought alongside to make things easier for the next family in the same situation. Amy has been recruited by top focused medical teams in our rare community because of her personal expertise. Through her work and collaboration, she has gone on to help launch medical research that is relevant to parents of children who are struggling to navigate their way through the medical system. It's incredibly important to have others ahead of you on the journey you travel, a special someone who can be there to shine a light on a rare cause and help guide the next steps for someone else. . . Amy is an invaluable team leader who makes a difference by truly changing lives!

Melissa Tumblin, Founder Ear Community

I first met Amy back in early 2004, when I was a new nurse and she was a new medical mom...

Seeing Amy at work advocating for and caring for her daughter, was very inspiring to me. It was a big part of what made me want to foster medically fragile kids. I saw her fight for her daughter, and I wanted to be a part of that fight too.

Back in 2004, there were not many medically fragile children living at home, so Amy was one of the parents that blazed the trail for all of us who came after her. Her experience, advocacy, compassion, dedication, diligence, organization, and skill at navigating our complex medical systems, will be of immeasurable benefit to anyone who is lucky enough to have her as a part of their team.

Kerri Markley RN, BSN

Free Journey Discussion

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Phone : 206 466-0707